My mother has been receiving care for years, recently increased to 6 times per day – some paid by Social Services, the remainder topped up by us (around £1,000 per week). If challenged the staff in the hospital would offer “even if it was authorised to provide 24 hr care there wouldn’t be enough carers to fill the need” !! 24-Hour Home Care We’re Redefining Home Care with Around-the-Clock Services. My 77 yr old mum isn’t a nurse?! A year ago she went into a nursing home for a respite stay & CHC decided to keep her in there claiming that “her care needs are best met in the care home” but they’ve not given me an explanation of why that might be. Social care has just told us they are taking back dad’s budget for his day and night care he can have 4 visits a day and he will go into a home on the 11th December . Today’s article charts a typical scenario where the NHS agrees to provide NHS Continuing Healthcare at home – to fund for someone in their own home – but the funding is not enough. What a great programme BBC2’s Hospital is, shining a light on our amazing healthcare with dedicated staff working in challenging conditions. NHS England has ordered a rapid acceleration of care home vaccinations in response to rising Covid outbreaks in which deaths of residents have risen to levels not seen since May. They have not done a capacity assessment and we feel we are being pressured to do something which we know will have a negative impact on mum. Do you think it would be fair on her to move her back home? My aunt was recently admitted to a nursing home and is CHC funded. You could also report any care home that tries to get your father to pay unnecessary (illegal) fees. Apparently ‘family are expected to plug the gaps’ and our family is already receiving the ‘maximum’ care package!!! Sometimes clients prefer to book 3 x 8 hour visits in order to ensure caregivers are at their maximum level of alertness. & a 2nd carer to come 4 times daily for personal care. they have a Primary Health Need. Thank you so much Lynda I really appreciate that. A Best Interests meeting was arranged for April but this was cancelled on the day because CHC didn’t have anyone to chair the meeting or to take minutes – yes, really! We charge our 24-hour live-in care service on a … If you’ve been getting NHS continuing healthcare under the old scheme since before June 2015, you’ll continue to … So if the current visits are not enough, this is potentially neglect by the CHC/CCG. It was always mum’s wish that she is looked after in her own home & she expressed this in her POA (I’m her sole attorney). Thanks, My mother has 2 carers 4 times a day, lives alone and is bedbound. Wondering also shall we get a social worker as the hospital one is all for them . One problem I have is I have a phone number to claim back from December 1st care home fees, which she pays, however I have rung over the past two weeks the number given and left messages but no contact back. I am in an awful predicament. Unfortunately, in the county he will be moving to we cannot find a nursing home who’s fees are less than £800 and most are around the £1000. When we started cancelling some calls in the day to avoid th distruption they told us off stating of a weekend at least one call a day has to be done by the carers so they can come in and check on my nan and make sure nothing has happened. Your GP can arrange for community nurses to come to your home and provide nursing care for you there. Close menu. Patricia – there could be a ulterior motive on the part of the care home, but it’s not possible to say here. On the other hand, 24-hour care means that several caregivers rotate shifts throughout the day.Is 24-Hour Care the Same as Live-in Care? Stroke care. collecting prescriptions or your pension. My dad had a stroke 8 weeks ago the hospital have given up on him and just want him out now as he’s just a bed blocker to them now, said he’s medically fit. (I’m guessing not.) Continuing Healthcare funding cannot be ‘topped up’ in the same way as local authority care (LA) – Continuing Healthcare should cover all assessed care needs in the first place. Mum does talk to us but not many people understand what she say’s, she wants to go home, but the social workers say its not possible as there is nobody at home to look after her, but we think she is giving up as she is not happy where she is. Where do I go next to get through or get this sorted? The summary states “Mr A requires a safe and 24 hour supervised accommodation with intermittent access to carers”. It’s devastating – we are passed from pillar to post… I AM WORN OUT CHC say he must go in a home where a nurse us on duty as dad needs 24hr nursing? There’s also a section on Best Interests meetings in the National Framework guidelines. We work to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems. Not sure if you having 24 hr care in place already will influence their decision or not, the qualification is both strict and sketchily adhered to depending where you are, your dad’s health anyway. For those who need around-the-clock care, a long-term care facility is not the only option. After him being housebound since Nov. 2018 I just paid for a ramp etc. She has lot of falls so now I have to take her to toilet and wash , bathe her and dress her. brushing your hair. We were thinking it was easier to just totally sort our own carers out then argue after to keep them after if you get the decision. It’s only a matter of time before she discharges herself without a care package, and ends up struggling and falling yet again (this has happened on repeat for 2 years or so.. ). If you have 24 hour care from a live in carer, he or she stays in your home and will be available to support you overnight as well. This is a requirement under the Care Act, and no one should start paying care fees until this has been completed and a CHC funding decision made. Sadly, it seems increasingly common for local NHS commissioning units to try to get away with providing less care than is needed for people at home. Any help would be appreciated as we are desperate. To make a long story short, I had to put in a massive complaint about the manager of the care home, which I did to all the relevant authorities. A primary caregiver who works 4-5 days of the week and a secondary caregiver who fills in the remainder of the week. She was placed there after being detained under section 3 for several months. The option of funding my wife’s care at home was not given. They have said she just needs someone there at night as she is on permanent oxygen. The care hours per patient day required to deliver safer care can vary in response to local conditions, for example the layout of wards or the dependency and care needs of the patient group it serves. We don’t want this and think he is better off in a care home, we cannot look after him. 24 hour care is around-the-clock, daytime and overnight. We went to an Multidisciplinary Team (MDT) review meeting which turned out to be a discharge planning meeting. NHS 24 provides health information and advice to the people of Scotland through websites, webchat and telephone services My plan is to contact the CCG to ask for the “onward referral for an assessment of eligibility” to be set in motion. That’s so distressing, Vicky. To provide our valued clients and their families with the most convenience, our 24-hour home care services and live-in care services are available in Denver and Wheat Ridge, for all hours of the day, every day of the year, there are never any long-term contracts or commitments required, and all care comes backed by a 100% satisfaction guarantee. Because the money is stacking up and they want it back. You can normally find out who they use and check if you’d use them so if it came to it you could have a simple transfer from self funded to CHC. Continuing Healthcare funding and choice of care provider/care home. (No nursung home will take my dad – he’s no easy patient!!) 24-hour Care Case Study: Anne. This can be reduced by having 6 days care per week or by family members coming to stay during holidays. I am going to push for the checklist to be completed in the hope that it means they cannot force discharge which would allow more time on the stroke rehab unit as 7 weeks is not long especially when mum couldn’t be assessed in the 1st 3 weeks because she was very unwell and since then has had infections, delirium and was wiped out for a week after they put her in a standard wheelchair on 3 occasions after saying she could not use a standard wheelchair. You’ll find more on this in the National Framework guidelines: http://caretobedifferent.co.uk/continuing-healthcare-assessment-guidelines/. Thankyou for this amazing response. Local family can offer some help, but sadly can’t completely fill the gaps until a care package is in place. Care Homes provide care 24 hours a day and the fees range from £875.00 per week, depending on the region of the UK. If you receive NHS continuing healthcare in a care home the NHS pays your care home fees. a care home), but the actual Continuing Healthcare funding should cover all his assessed care needs, whatever degree is needed, and it covers care in any setting. How do we get the CCG to stand up to their obligations. No-one discussed with me beforehand what having a live-in carer would involve, & I’m angry because it does feel as if I’m being bullied into having one. In this 8 year period his memory has rapidly declined and now he has oesophageal cancer and had a stent fitted not long ago. If you haven’t done so already, write to everyone you’ve had contact with in this process and others, e.g. My mother has spent the last 5 weeks in hospital and has now been fast tracked for continuing healthcare. They called them weekly to arrange visits per week, so have their lists of suppliers. Sadly, although there are a few things good about the home the bad totally outweigh the good and I really believe that for his health and welfare I should move him to a different home. Sadly comments that that of the nurse often put families off from applying. To cut a long story short, he has now had the plaster on his leg for over 16 weeks and has now been told his leg is not knitting and a amputation is recommended (he has also got diabetes, leg ulcers, kidney problems and hypertension), the leg is non weight bearing. In July 2015 mum came home from a 2-week respite stay with a pressure sore on her sacrum, which was looked after at home with District Nurse visits. How much does live-in care cost? Have I misunderstood? so we don’t finish a meeting as we’re attempting to hold them to the fire by saying this is the framework procedure! This may include creative and complementary therapies and rehabilitation, such as exercise programmes. With 24 hour care, two caregivers are booked daily and work 12 hours each. How do I find a 24 hour … All content on the Care To Be Different website is copyright Continuing Care Solutions Ltd. NHS Continuing Healthcare at home – how much care should be prov... https://caretobedifferent.co.uk/wp-content/uploads/2014/07/Care-at-home.jpg, https://caretobedifferent.info/wp-content/uploads/2020/10/ctbd-logo.jpg. Where do we stand? Had a fast track meeting to fill in the application form with my sister which they (palliative care nurse and community liason nurse) were trying to figure out a care/discharge plan at the same time. I was told he could have three hours a day if he comes home, whereas he has been assessed as needing continuing care 24/7. This took place at the start of January 2016, once he had been provided with all the necessary equipment (e.g. I have to look after mum 24/7 she cannot be left for a minute.i fell the Nhs r paying the wrong people too,I do everything. 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